Caring for an adult disabled child involves more than meeting daily needs, it requires thoughtful preparation for the future. As a parent, you want to know your child will be supported and protected, even when you are no longer able to provide care. With careful planning, you can create a long-term care plan that provides both financial security and peace of mind.

Understanding Your Child’s Long-Term Needs

Start by identifying your child’s current and future needs. Consider their medical care, daily living assistance, housing, and social support. Will your child need full-time care, or can they live independently with some assistance? Understanding these needs will guide the decisions you make.

It can also help to document important details about your child’s medical history, routines, and personal preferences. This information can be invaluable for future caregivers.

Setting Up Financial Support

A key part of planning involves providing financial resources for your child’s care. A special needs trust allows you to set aside funds without affecting your child’s eligibility for government benefits like Supplemental Security Income (SSI) or Medicaid. This type of trust can cover expenses that public benefits may not, such as specialized therapies, education, and recreational activities.

You might also consider life insurance policies or other investments to provide long-term financial stability. Consulting with an attorney who understands special needs planning can help you decide the best approach for your family’s situation.

Choosing a Caregiver or Trustee

Selecting someone to manage your child’s care and finances is one of the most important decisions you’ll make. This person, often called a trustee or guardian, will be responsible for carrying out your wishes and making decisions when you cannot.

When choosing a caregiver, consider their willingness, availability, and relationship with your child. You may also want to name a successor to step in if the primary caregiver is unable to continue.

Creating a Letter of Intent

A letter of intent is a document that outlines your child’s personal information, medical care, daily routines, and your hopes for their future. While it is not a legal document, it can provide essential guidance to future caregivers and help them understand your child’s unique needs.

This letter should be updated regularly as your child’s needs and circumstances change.

Reviewing and Updating Your Plan

Life changes over time, and your care plan should evolve with it. Regularly review legal documents, financial accounts, and care arrangements to keep everything up to date. This helps maintain continuity and provides reassurance that your child will receive the care they need.

Take the Next Step in Planning for Your Child’s Future

Planning for your adult disabled child’s lifelong care requires thoughtful preparation and attention to detail. By taking steps today, you can help provide security and support for the years ahead.

At Springer & Lyle, we understand the unique challenges families face when caring for an adult disabled child. Our experienced legal team can guide you through the process of creating a comprehensive plan tailored to your family’s needs. Contact Daniel Abasolo today at 940-387-0404 to schedule a consultation and to learn how we can help you protect your child’s future.

Springer & Lyle is located at 1807 Westminster, Denton, TX 76205.